So often when we have chronic illness, we grieve the things we were able to do for ourselves and others. I tell this story as a hurray! for the little things we can do that can add up to big things. Many synchronicities have come my way, often when I think I’m off the path. I find it gratifying that when feeling lost, I often find I am in just the right place. Today, I got off […]
I first wrote this as a response to a Facebook fibromyalgia group post asking how we cope when things are really bad ~ meds don’t help; we can’t shower or even go get a drink of water. Especially when we can’t do much else, the biggest thing is perspective, which I know is hard to keep in the moment and easier to access if we’ve worked on it and integrated it before we’re in crisis […]
Tammy was our most excellent admin at work and became a dear friend of mine. She has been suffering with the miserable mystery and costs of Lyme Disease for over a decade. It has worsened greatly and she is in dire need of help. Tammy has always been a positive, kind, and compassionate person and so deserves every kindness in return. If you can help with a financial contribution, no donation is too small and would […]
Paperwork is more anxiety-producing than ever before. Eric* (my PAM/Prince Among Men) helped me fill out my dad’s request to the Air Force for Dad’s honorable discharge certificate (required for Dad’s veteran aid and attendance benefits) and took the paper to my dad’s assisted living place for him to sign. Eric* then came home, put the form in an envelope, addressed and stamped it, and put it with the mail. I feel lighter already. Tomorrow/today, Eric* will help me […]
After my California trip, as much as I loved it and was glad I went, I crashed. Crippling fatigue, leg pain, headaches, and most of all, generalized anxiety that just built day by day. Where I had mostly stopped using Klonopin, I used it every day, to the max, to no avail. What was wrong with me? Well la di da, one day I realized that that yellow morning pill, Wellbutrin, was not represented in […]
Eric is a roller coaster enthusiast. Until I met him, I didn’t know they existed and actually organized. He can tell you just about any detail of any major roller coaster in the US, even given only a brief glimpse on TV or the internet. So, although amusement parks aren’t my usual adult destination, we’ve been to a few together. The one I really like is Knobles Groves, in Pennsylvania. It is family run, the […]
Downswing I’ve been on a downswing since I got back from Cali (leg pain and weakness; fatigue; headaches; upset stomach off and on; one small anxiety attack). I’ve been really sick the last couple of days (running hot and cold, sometimes at the same time, with major sweating and some shakiness throughout my body; shaky hands; headaches; stomach pain and almost throwing up twice). I don’t know if I would have leg pain if I had […]
1. Upswings! Don’t you love them?! This is my one week anniversary for this lovely episode of upswing. Not much pain, way more energy. Got Stuff Done. Took Walks. Ran Around. Yesterday, my fibro specialist, who hadn’t seen me in months, was awed by my awesomeness! 2. Visiting with my mama. 3. Now that I have a little Stuff, (pre- Regular Stuff), not relying on alcohol and using far fewer OTC meds to kill pain. My new […]
Well. I let it be known that I sent my medical marijuana application to the state last week. The card takes about a month to come. Two hundred bucks! A friend knows and sends me a present in the mail. I don’t open it right away because I’m already woozy from my massage therapist’s massage and awesome Reiki session. The morning after, I opened the box. I opened the box and set the squat mason jar on […]
My new, so wonderful, eastern/western naturopathic doctor, ordered three tests for me to do at home and mail to the lab. One poop sample to test for microbes, and two saliva tests to test for parasites (she’s very suspect of our SE Asia trip, and you can pick up some type of parasite anywhere). I haven’t taken the saliva tests yet because I’ve yet to work up enough saliva. There are three days of spitting into a […]
Uh Oh, Rerekuka 