So often when we have chronic illness, we grieve the things we were able to do for ourselves and others. I tell this story as a hurray! for the little things we can do that can add up to big things. Many synchronicities have come my way, often when I think I’m off the path. I find it gratifying that when feeling lost, I often find I am in just the right place. Today, I got off […]
I first wrote this as a response to a Facebook fibromyalgia group post asking how we cope when things are really bad ~ meds don’t help; we can’t shower or even go get a drink of water. Especially when we can’t do much else, the biggest thing is perspective, which I know is hard to keep in the moment and easier to access if we’ve worked on it and integrated it before we’re in crisis […]
Tammy was our most excellent admin at work and became a dear friend of mine. She has been suffering with the miserable mystery and costs of Lyme Disease for over a decade. It has worsened greatly and she is in dire need of help. Tammy has always been a positive, kind, and compassionate person and so deserves every kindness in return. If you can help with a financial contribution, no donation is too small and would […]
Since we last chatted, I’ve tried numerous medical marijuana strains. A couple smoked, mostly those in a tincture. My dearest hope has been to have something to get rid of pain (mostly in my head/neck and leg) and anxiety, while maintaining enough to go about my daily stuff, including going to my appointments and seeing my dad/taking him to his appointments. So far, it turns out that if I want to get rid of pain, I have […]
… Okay, I’m stoned. And out of pain. And stoned. Good thing it’s a Sunday. More later ….
Paperwork is more anxiety-producing than ever before. Eric* (my PAM/Prince Among Men) helped me fill out my dad’s request to the Air Force for Dad’s honorable discharge certificate (required for Dad’s veteran aid and attendance benefits) and took the paper to my dad’s assisted living place for him to sign. Eric* then came home, put the form in an envelope, addressed and stamped it, and put it with the mail. I feel lighter already. Tomorrow/today, Eric* will help me […]
After my California trip, as much as I loved it and was glad I went, I crashed. Crippling fatigue, leg pain, headaches, and most of all, generalized anxiety that just built day by day. Where I had mostly stopped using Klonopin, I used it every day, to the max, to no avail. What was wrong with me? Well la di da, one day I realized that that yellow morning pill, Wellbutrin, was not represented in […]
Eric is a roller coaster enthusiast. Until I met him, I didn’t know they existed and actually organized. He can tell you just about any detail of any major roller coaster in the US, even given only a brief glimpse on TV or the internet. So, although amusement parks aren’t my usual adult destination, we’ve been to a few together. The one I really like is Knobles Groves, in Pennsylvania. It is family run, the […]
I love to cook. Especially today, my mom will be here for a visit in an hour or so and I’d love to be able to create some beautiful food for her, as I have in the past. Unfortunately, I can’t. Not that I’m perfect when I do cook. Yesterday, I cooked some garnet yams (a great thing to cook extras and have for meals and snacks). Unfortunately, I mistook our unlabeled container of cayenne pepper […]
Downswing I’ve been on a downswing since I got back from Cali (leg pain and weakness; fatigue; headaches; upset stomach off and on; one small anxiety attack). I’ve been really sick the last couple of days (running hot and cold, sometimes at the same time, with major sweating and some shakiness throughout my body; shaky hands; headaches; stomach pain and almost throwing up twice). I don’t know if I would have leg pain if I had […]
Uh Oh, Rerekuka 